I’m continually inspired and impressed by how people with Parkinson’s aren’t just adapting—they’re leading and eager to help others.
One incredible example is The Parkinson’s Landscape, a living, evolving map of our disease created by Joseph Healy, a software engineer, Vietnam Veteran, and fellow Parkie diagnosed in 2024. Like so many of us, Joseph quickly realized that navigating the flood of Parkinson’s information—research, treatments, trials—can be overwhelming.
So he did something extraordinary.
He used six different AI platforms to organize that chaos into clarity.
From causes and symptoms to emerging therapies and environmental exposures, Joseph’s document doesn’t just inform—it empowers. It’s a remarkable tool built by someone living with Parkinson’s for others walking the same path.
🔗 Software Engineer Joseph Healy – Used AI to createThe Parkinson’s Landscape
💡 What makes this truly special is that it wasn’t created by a foundation or research lab. It was built by one person with Parkinson’s who saw a need—and used the tools of today to make life easier for others tomorrow.
This is the document. Page 3 contains a link to the most up to date version of this document and a Table of Contents. You are also able to download it.
🤝 Through the Prize Fighter’s Forum on Parkinsonz.org, I hope to build something similar—a dynamic, AI-powered resource drawn from the collective wisdom of those who’ve been living with this disease for years. Not just clinical summaries, but real-life experience: what works, what doesn’t, what surprises us, and what gives us hope. People will be able to comment, support each other, and the knowledge and wisdom shared in those comments will update the summary on each topic.
Imagine an evolving guide shaped by our community—organized by AI, refined by humans, and always growing.
Together, we can turn scattered knowledge into shared strength.
I am not very good with computers and have been writing blog posts with the help of AI to summarize some of the knowledge shared by other’s with PD, but with Joseph’s help and the help of others like you, I am hoping we can create a lasting resource for the Parkinson’s community, while at the same time bring the community together to share our ideas, challenges and solutions and support one another.
💬 If you’re someone who’s been living with PD—or loving someone who is—I want to hear from you. What should be included in a community-built guide? What insights do you wish you had earlier?
If you have any thoughts or comments please e-mail Sara at parkinsonzexercise@gmail.com.
